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changemakersaathi

The Two worlds: Changemakersaathi Story


Bhuvaneshwari Kartikeyan – Changemakersaathi for December




The Two Worlds


I have been spending my last 2 decades in two different worlds, one, as a default of being born in and the other, a choice I took to spend my time in, which has now grown
into my passion….


Since my graduation in a mundane commerce stream [like so many others of my age], I was shown the world of AUTISM by an already enlightened colleague of mine, since then I have not looked back!!
Not only has my life changed for the better, but, it has also touched the lives of my immediate family and close acquaintances and made it a beautiful way to live and view it.
All along, to me, it was very obvious that the ‘regular’ world and its inmates neither had the time nor the inclination to know the ‘other’ special world.


The 2 worlds had an invisible wall between them, with doors for entry
into but no exit from one to the other!!

I could see that the inmates of the special world [including that of the caregivers] were found to be ever cheerful and ever giving what little they had, freely to those of who
asked of them and never complaining but all absorbed in their ‘own’ special world, while their ‘regular’ counterparts were pitying and giving an unhearing ear to the owes and
pains of the unknown world that they soon preferred to put away from their minds preferring to be absorbed by their own selfish and petty needs and worries…

At one point in my life, I was fortunate enough to be involved in a 3 month UNESCO project with the silent and ever striving NGO- ROSHNI, RKA, Gwalior whose aim was to narrow the divide between the 2 worlds through providing with personal care and training to the world of ‘special’ inmates and also to enrich and empower the ‘regular’ world about the ‘special’ needs and how to handle them within their given powers, capacity and time.

Thus, with a common mission and trained staff along with a receptive group of 20 regular school teachers, ROSHNI and UNESCO with the 20 selected and enthusiastic school
teachers put their heads together resulting in an enriching experience that concluded with heightened moral, spiritual and educated values that have transformed and touched
every one of the participants in a unique way for the better.

Starting from the view that the ‘regular’ world had no ear or heart for the ‘special’… to the view that the ‘special’ would not fit into the ‘regular’ world …this unique team and its mixed members realized that, once the invisible ‘wall’ was pulled down and a little time and effort put into the situation there was only hope, success, self respect, heightened self esteem and happiness for all involved on both sides of the ‘wall’.

One learnt that both sides had a lot to teach and learn from each other giving a wholesomeness that thus far, did not exist in anyone before this enlightenment occurred along the way. Thus many children viewed as being ill behaved were discovered to have had issues with coping with the various
expectations while many teachers wanting to help but not knowing how to were now empowered on how to read the warning signs and how to remedy the issue without
obviously doing so, well in time before further damage could be caused to the psychic of the child’s mind, spirit and body, to mention the least if at all any….

I would like to humbly conclude that, missions like these will and should go on for ever, with missionaries who will come and go during the time; goals that will and should
change according to need; so will the time taken for the needed change vary with the intensity of the goal; more ‘walls’ will be torn down between differences and more humanity brought out within each mankind during the process of change that takes place each time.

MRS BHUVANESHWARI KARTIKEYAN
DSE-ASD


Creative representation for the ChangemakerSaathi story “The Two Worlds” is done by a supertalented CreativeSaathi associate Ansh Batra whose 2 paintings depicts 2 different worlds.

Artwork by Ansh Batra
Artwork by Ansh Batra

MRS BHUVANESHWARI KARTIKEYAN Profile summary

Mrs Bhuvaneshwari Karthikeyan has worked as special educator in –


BLOOMING BUDS SCHOOL Noida (2000-2001): Training children in age 3-4
years for Nursery and L.K.G .School admissions.
ASD Center, Spastics Society of Karnataka Bangalore (2002-2003): As
Volunteer worked with ASD children with facilitated communication board on
academics.
DSE-ASD Course (2003-04): Individualized Planning / Group Teaching on
(a) Sensory integration
(b) Behaviour modification
(c) Social skills training
(d) Communication through PECS and MEKETON Sign
Special Educator in Spastic Society of Karnataka:
(a) Class teacher to 9 children from 2004-2007 with mixed Disabilities CP
(Verbal / Non-Verbal), LD, MR (+Microcephaly), ADHD (Verbal), Muscular
Distrophy (Duncchen)

(b) ADL Training individually to Autistic / Non-Verbal / Blind child of
09 years between 2005 and 2006.
(c) Aided a Microcephaly low vision child of 11 years in tactile sense
enhancement and pre-vocational skill training.
(d) Counseling parents for better understanding between child-mother,
social issues support, continuity of class taught concepts at home.

(e) Record Maintenance / IEP / Annual reports per child per year of all
programmes implemented / planned / covered.
(f) Curriculum dealt with pre-learning skills in language / number skills /
Behaviour- social skills / gross fine motor sills / EVS / independent skills /
sensorial concept learning / communication through AAC picture symbol
charts to age group of 5-13 years.
Worked as special educator in ROSHNI, Ramakrishna Ashrama between 01
July 2007 and 12 April 2008.
(a) Educating the Autistic students [verbal and nonverbal] on Pre-Learning
Skills in Language (Expressive and Receptive), Number Skills, Behaviour
(Social Skills), Environmental Studies Skills, Independent Life Skills, Sensorial
Concept Learning, Alternative means of Communication through PECS and
Communication Board suiting their specific needs in mainly a one to one set
up besides taking them in a group situation at times. The age of children
varying from 3 to 15 years.
(b) Assessing Educational Needs of Children with ASD, CP, MR and
Multiple Disabilities (Age 0-7 years) in the Early Intervention Group.
(c) Maintaining monthly, 6 monthly and annual reports of each child
(individual and group session).
(d) Preparing outline of IEP Format and Annual Report for the 3 groups
functioning in the school i.e. Early Intervention group, Primary Group and the
Vocational Group covering all the developmental areas required to be
addressed for these groups.
(e) Involved in Coordinating and Conducting Workshops as a Resource
Person on behalf of ROSHNI [being a STATE NODAL AGENCY PARTNER of
National Trust] for Mainstream Teachers and Special Parents supported by
the Volkart Foundation and the National Trust throughout the year on various
topics concerning with Inclusive Education and Special Teaching Techniques.
(f) Being part of a UNESCO Project that involved in making an Indian
Adapted Version Of The Teachers’ Guide For Inclusive Education. The
scope of work involved identifying 16 schools in the mainstream teaching to
participate in workshops, training a selected representative of the school to try
out the UNESCO’s teachers’ guide on any special child in their class / school
and see whether the guide works in the Indian set-up or not and if so, what
does and what doesn’t. This involved visiting the 16 schools and observing
the special child in his / her classroom setup, check their note books, the
layout of the classroom, for any changes and give remedial to the teachers on
how to handle the child, record an IEP for the child concerned and support the
teacher in changing her teaching methods to make inclusion work, finally
rewriting the Teachers’ Guide and coming out with an Indian version of the
same.
• Worked as Special Educator in Udhavi, Connoor, Nilgiris between Jul 08 and
Apr 09. Involved with the assessment and formulation of programmes for
children with Autism and Cerebral Palsy between ages of 10 and 12.
Aided in starting a parent run special group called SPARRSH (yet to be
registered) of 7 children (aged between 3 and 12 years). Supported them in daily
conduct of sessions on language / communication / academics / social / behavior
/ ADL / motar skills from Jun 09 to Nov 09 on a One-to-One basis as well as
group.

->Cosy cots 2009-2010 Dwaraka
Special school she focused on academics ADLs training communication and yoga.

->2010- 2011 Asha school, Base Hospital New Delhi
26 ASD MR and CP kids from age 5 to 18 years
One to one sessions and group on SI, gross motor, Fine motor, ADLs, expressive and receptive language,pottery, computers, speech,cognitive and perception sessions
PT meets,REPORT CARD FORMATING AND ASSESSMENT FORMATS COMPILED, upgrading of services for ASD kids already existing in school but denied to ASD kids due to stereotyping ensured
Integrated socializing and play therapy inculcated into the school system ,sports day and its practice sessions

->2011-2013 Spastic Society Karnataka second tenure as prevocational skills, functional literacy and basic living skills training,physio therapy, communication, social skills and practical training in cooking shopping sight word literacy and survival


–>2016-2017 Abhilasha school secunderabad mixed disabilities with basic skills training and academics in group
Online free one to one specific home management tips on go and individual forums from2018 still ongoing.

–>In kanpur chakeri under AFFWA as president AFFWA (local)
2021-2022 reopened 4 schools(2 kindergarten schools..one underprivileged school and one special school…) closed during covid and kept them running to full strength from maintenance of buildings and grounds play and education equipment to recruiting of teachers training them with teaching capsules and log book and IEP trainings and record maintenance ,SI,physio therapy,hearing and sign language training
Integrated inclusive education.New Education policy and RTI into the 4 schools intake and daily running of classes.

->Trained special kids and teachers in alternative methods of communication vocational training in masala making..Candle making.. paper bags..greeting cards…jewelry making tailoring.

Author Bhuvaneshwari Kartikeyan









Categories
CreativeSaathi

Welcome to our new members in CreativeSaathi team

CreativeSaathi associates

1. Dhrov Tikoo 14 years, New Delhi (Visit my profile here..).

Check Drov’s artwork displayed in SpecialSaathi online Art exhibition on 3rd December (international day of persons with disabilities) here….

Dhrov bagged second position (Age category 12+ to 16 years) in SpecialSaathi Children’s day Art competition, have a look at his Artwork here...

Dhrov Tikoo CreativeSaathi associate


2. Dhairya Kumar Pal 14 years, Ghaziabad (visit my profile here…)

Check Dhairya’s Artwork displayed in the SpecialSaathi online Art exhibition on 3rd December (international day for persons with disabilities) here….

Do check Dhairya’s artwork for SpecialSaathi online Art exhibition held on Children’s day here….

Dhairya Kumar Pal CreativeSaathi associate


CreativeSaathi Junior

1. Lavanya Iyer 9 years, Gurgaon visit my profile here…

Check Lavanya’s artwork for SpecialSaathi online Art exhibition on 3rd December (international day for persons with disabilities) here….

Lavanya bagged first position (age category 6 to 12 years) in SpecialSaathi Children’s day Art competition, have a look at her Artwork here...

Lavanya Iyer CreativeSaathi Junior

Congratulations CreativeSaathis!! Specialsaathi is proud to have you all as a part of our rocking team.

All the best to rest of the kids participating in our online Art exhibition. Thank you for the participation! Keep up the good work.


Categories
BloggerSaathi Story

Turmoil of an Autism Mom Part 1


My journey with Autism By Megha Batra Jairath


There is so much I feel and want to say but expressing my thoughts had always been hard for me. But off-late, I have started writing my thoughts and I am liking it. I don’t know what energy is making me do so but I’m going with the flow. Special thanks to specialsaathi.com, which gave me a platform to express myself and write about my feelings.


Some incidents in life, force you to self-reflect, force you to become a better version of yourself, and I am in that process in life, where I am healing myself. But the path of healing is not at all easy, it has many ups and downs and a lot of hindrances. I have been hurt many times in the process and it takes time to be myself again. But every time I have come back, I am one step closer to my higher self.


My healing journey had already started before my daughter was born. I was blessed with Anaisha after almost 4 years of immense struggle and when I thought, no other problem can come into my life now, that is when she was diagnosed with Autism. Anaisha means “special” and little I knew; God will take it literally! Her diagnosis created many doubts, and I constantly questioned my prayers. With doubts still in my heart, I determined not to be defeated and take this challenge head-on.
I have been wanting to write about my understanding of Autism on this website for a long, and today on International day for persons with disabilities I am taking this opportunity. I never knew that the 3rd of December, which happens to be my birthday as well, coincides with “World Disability Day” and I would have never realized it if Anaisha had not come into my life.


I had just heard about Autism & never lived closely with any autistic person until my daughter was diagnosed with it. It was not at all easy to accept initially but we had no option. Life just changed after that & my methods to teach her changed. To teach a special child, a parent must learn new techniques which are not easy & this girl is making me teach new things every day.
There are days when I feel proud of her, but I won’t deny it, some days make me feel terrible, especially when she tries to communicate something that I am not able to understand & I pray to God to give me strength these days.


There isn’t much awareness about Autism in India and that’s the saddest part.

Autism is a neurodevelopmental disorder with difficulties in social interaction & communication. They even have restricted & repetitive behavior. Some children have issues with sensory processing. Some experience regression in their communication & social skills after reaching developmental milestones at a normal pace, & this is what happened with my daughter. She was developing at an absolute normal pace till she was 17 months & then suddenly she started showing signs of regression. (That is why it was even more difficult to accept)

Not every child on the spectrum is the same. Like you cannot compare two typical children, similarly, you cannot compare two autistic children. One keeps on hovering in the spectrum from mild to severe depending on the interventions they are getting. And that is why we call it Autism “Spectrum” Disorder.

I know that the road ahead will have many ups & downs, but with hard work & determination, Anaisha will bloom. She has already come a long way. She now speaks more than she has ever had. She has started to understand more & I promise one day she will do great things in life. I know Anaisha will find her way & will blossom
So what she is different, she was born to stand out and so the saying – “Why to fit in when you were born to stand out!”
So today, on the International Day for persons with disabilities lets pledge to love and support people with Autism and other disabilities a little more.

Read my poetry A prayer from an Autism mother to God, here….

Author- Megha Batra Jairath

Megha is a mother of a 6-year-old girl on autism spectrum disorder. Megha is a working professional in an Energy Consulting firm in New Delhi. She has a strong inclination towards dance, which is her therapy for life. In her free time, you will often see her making Instagram reels @megbats2020



Artwork by Ansh Batra

The creative representation for today’s post on International Day for persons with disabilities is done by CreativeSaathi associate supertalented Ansh Batra


Categories
specialsaathi Story

International day for persons with disabilities

Categories
specialsaathi Story

International day for persons with disabilities

Abled does not mean enabled. Disabled does not mean less abled. – Khang Kijarro Nguyen